WeBehave.com Offers Resources for Children with Special Needs

WeBehave.com offeres some interesting resources for children with special needs.

Check out their section at WeBehave.com

Products Feature:
- Videos
- Books
- Clothing
- Laces
and more



Special Stuff for Special Needs

Learning Videos for Special Kids Informative! Effective! Soothing! Appropriate for children with learning disabilities like Autism, Down Syndrome, Asperger's, Cerebral Palsy, Dyslexia, etc. To find out more about these helpful videos, click here.

Books & Stuff for Kids with Special Needs (their Parents and Siblings, too) Lively, heartwarming and supportive -- these books and products help kids with special needs feel good about themselves, and provide valuable insights for their family members, too! Click here for more.

Great behavior management, emotional growth and character development program. To find out more, click here.

Adaptive Clothing Adaptive clothing that can make your life a little easier -- like bibs to protect clothing from spills and ponchos that cover you and your wheelchair. Find out more about our helpful adaptive clothing here.

'Lastic Laces These elastic no tie shoelaces are a boon to the elderly and physically challenged. You lace them once and never again. The elasticity built into these coiled shoelaces keep shoes snug on feet, yet stretch so it's easy to take shoes on and off. See more about our great elastic shoelaces here.

Care From Special Toddlers to our beloved Seniors, you'll find these products a blessing!! Click here for great products that help you through the daily routine.

Need Special swim wear or incontinence products? Click here.

[tags : disability epilepsy autism children pediatric neurology]

FGA Support Group - Mothers' Day Thanksgiving

FGA Support Group for Parents of Children with SpecialNeeds is hosting a Mothers' Day Thanksgiving Tea to honour all special mums, details are as follows:

Date : 6 May 2007 (Sunday)

Time : 2.30 - 6.00 p.m.

Venue : FGA, Main Building, Basement 6-9
Lot 689, Taman Goodwood,
Jln Kuchai Lama, Off Jln Kelang Lama
58200 K.L.


We have invited Stella Chan and family as our guest
speakers and they have lined up an interesting
programme for us.


Profile of Stella Chan

Being a parent of a child with special needs and realising the fact that parents are the first and
major support of any child, Mrs Stella Chan-Cheong quit her job in 1995 to dedicate herself to seeing her daughter Charmaine be what and who she is today.

Since Charmaine’s birth 17 years ago, Stella has been actively involved in a parent support group headed by Pn Kamariah Amin which meets once a month. She was also a committee member of the Kiwanis PJ Down Syndrome Parent Support Group and initiated a protem
meeting to form the National Down Syndrome Association of Malaysia. In March 2002, together with Professor Dr Madya Aishah Adam she initiated the formation of KSSD-HUKM (Kumpulan Sokongan Sindrom Down)- a one-stop-centre, so called 'Down Syndrome Clinic', parent support group and resource library at HUKM, Cheras.

Then in August 2005, together with a group of parents, she initiated an informal gathering of all
ex-students and parents of Kiwanis Down Syndrome Centres with the desire to start an alumni to help graduates live productive lives and create an environment and opportunities to develop their potential and abilities to the fullest.

She started' "CHIT-CHAT@TMLC', which is a free community service at Taman Midah Lutheran Church(TMLC) to meet and help other parents of children with special needs put in
that extra effort and walk that extra mile to ensure that their special children lead a normal life.

With the millenium challenge of 'Changing people's perspective of a person with Special Needs’ and turning the upside of 'Downs', together with Charmaine, both mother and daughter volunteer their services every Saturday at TMLC, every working Saturday at HUKM and once a week at the Kajang Children's Special Centre which offers early intervention programs, day training and work skills training programs for people with learning difficulties, workbase at Malaysian Care and supported living weekend program with Dignity & Services.


TESTIMONY
My Story by Mrs Stella Chan-Cheong

Before joining Taman Midah Lutheran Church (TMLC), I was from St Gabriel's Anglican Church in Sungei Besi where I lived and grew up. I attended Sunday School since Primary One. I also heard a lot about Jesus at Bukit Bintang Girls' School but only accepted the Lord when I was in Secondary One.

My youth days found me very active and involved in the Church Youth Fellowship, Music Ministry, Choir, member of The Singing Saints, Captain of the 2nd KL Girls' Brigade Company and a teacher in the Sunday School. As home was very near the Church, you could literally
find me there most of my free time.

I was still very active with Church activities during my working days until I became a tour leader with Reliance Travel. Due to frequently leading tours overseas, I found that I couldn't fit into Church and the people any more. Slowly I drifted away and backslided with a different lifestyle altogether. I had a good career and income. I found that I did not need God then. I was in spiritual silence until 1989 when Charmaine was born. It was a 'turning point' for me and the awakening of my spiritual life.

Charmaine was certainly a blessing in disguise! As the saying goes, 'There is a purpose for everything'. I believe there is also a purpose for Charmaine to be given to us and her birth is no coincidence but according to God's plan.

Not only has she been a joy and blessing to people around her, she has certainly brought our
family much closer and changed our lifestyle and attitude especially towards people with Special Needs and learning difficulties.

You can contact: Mrs Stella Chan-Cheong at
012-2987801 / chitchatsc@yahoo.com

We warmly invite all parents with special needs' children to celebrate Mothers' Day with us. Please do feel free to invite your friends who have special needs children to join us too!

Kindly RSVP by 2 MAY 2007 to facilitate our planning.
For more information, please contact Wai Sze at 016-3400849, Jill at 016-3944206 or email to
kwaisiong@yahoo.com.my


www.fga.com.my
[tags : disability epilepsy autism children pediatric neurology]

Autism Speaks Website

Autism Speaks is dedicated to increasing awareness of the growing autism epidemic and to raising money to fund scientists who are searching for a cure.

It was founded in February 2005 by Suzanne and Bob Wright. Bob Wright is Vice Chairman and Executive Officer, General Electric, and Chairman and CEO, NBC Universal.

Autism Speaks and Cure Autism Now (CAN) recently announced plans to combine operations, bringing together the two leading organizations dedicated to accelerating and funding biomedical research into the causes, prevention, treatments and cure for autism spectrum disorders; to increasing awareness of the nation's fastest growing developmental disorder; and to advocating for the needs of affected families.

To learn more about Autism Speaks, please visit http://www.autismspeaks.org/.








What is Autism? An Overview

Autism is a complex neurobiological disorder that typically lasts throughout a person's lifetime. It is part of a group of disorders known as Autism Spectrum Disorders (ASD). Today, 1 in 150 individuals is diagnosed with autism, making it more common than pediatric cancer, diabetes, and AIDS combined. It occurs in all racial, ethnic, and social groups and is four times more likely to strike boys than girls. Autism impairs a person's ability to communicate and relate to others. It is also associated with rigid routines and repetitive behaviors, such as obsessively arranging objects or following very specific routines. Symptoms can range from very mild to quite severe.

Autism was first identified in 1943 by Dr. Leo Kanner of Johns Hopkins Hospital. At the same time, a German scientist, Dr. Hans Asperger, described a milder form of the disorder that is now known as Asperger Syndrome. These two disorders are listed in the DSM IV (Diagnostic and Statistical Manual of Mental Disorders) as two of the five developmental disorders that fall under the Autism Spectrum Disorders. The others are Rett Syndrome, PDD NOS (Pervasive Developmental Disorder), and Childhood Disintegrative Disorder. All of these disorders are characterized by varying degrees of impairment in communication skills and social abilities, and also by repetitive behaviors. For more discussion on the range of diagnoses that comprise Autism Spectrum Disorder, click here.

Autism Spectrum Disorders can usually be reliably diagnosed by age 3, although new research is pushing back the age of diagnosis to as early as 6 months. Parents are usually the first to notice unusual behaviors in their child or their child's failure to reach appropriate developmental milestones. Some parents describe a child that seemed different from birth, while others describe a child who was developing normally and then lost skills. Pediatricians may initially dismiss signs of autism, thinking a child will “catch up,” and may advise parents to “wait and see.” New research shows that when parents suspect something is wrong with their child, they are usually correct. If you have concerns about your child's development, don't wait: speak to your pediatrician about getting your child screened for autism.

If your child is diagnosed with autism, early intervention is critical to gain maximum benefit from existing therapies. Although parents may have concerns about labeling a toddler as “autistic,” the earlier the diagnosis is made, the earlier interventions can begin. Currently, there are no effective means to prevent autism, no fully effective treatments, and no cure. Research indicates, however, that early intervention in an appropriate educational setting for at least two years during the preschool years can result in significant improvements for many young children with Autism Spectrum Disorders. As soon as autism is diagnosed, early intervention instruction should begin. Effective programs focus on developing communication, social, and cognitive skills.


[tags : disability autism children pediatric neurology]

Global Campaign against Epilepsy: Out of the Shadows

Global Campaign against Epilepsy: Out of the Shadows

Mission statement:
To improve acceptability, treatment, services and prevention of epilepsy worldwide

Established in 1997 as a joint project of the:
World Health Organization (WHO)
International League Against Epilepsy (ILAE)
International Bureau for Epilepsy (IBE)

Objectives:

• increase public and professional awareness of epilepsy as a universal, treatable brain disorders;
• raise epilepsy to a new plane of acceptability in the public domain;
• promote public and professional education about epilepsy;
• identify the needs of people with epilepsy on a national and regional basis;
• encourage governments and departments of health to address the needs of people with epilepsy
• including awareness, education, diagnosis, treatment, care, services, and prevention.
  

Campaign strategy:
Working along two parallel tracks, the Campaign will:

• raise general awareness and understanding of epilepsy;
• support Departments of Health in identifying needs and promoting education, training,
• treatment, services, research and prevention in their countries.

Download : Campaign Info Here (252kb - PDF File)
Official Website : Click Here

[tags : seic epilepsy seizures children pediatric neurology]

Seizures & Epilepsy In Children

The creation of this Blog came to me one day when we realized that in the entire process of searching for information in Malaysia on Seizures and Epilepsy, was generally pretty limited.

We would like to put together as much information as possible that can be gathered from friends and family whose children are impacted with either epilepsy and seizures and have a common ground where we can share this information freely.

We are not sure how the blog will grow, but hopefully the information that you find on this blog would be useful for you.

Here's the blog on our son, Nathanael Lee - http://darentiff.blogspot.com


[tags : seic epilepsy seizures children pediatric neurology]

Feedback & Information for Seizures & Epilepsy In Children

Dear Friends

Would appreciate any feedback and information that you can provide.

We're looking for Information, Resources, Help, Therapy Sessions, Hospital Sessions, Seminars, Talks .. anything that can be useful to our community for Seizures & Epilepsy In Children.

Please feel free to leave a comment here.

Thanks
Daren&Tiff


[tags : seic epilepsy seizures children pediatric neurology]